Getting Involved in Research Studies

Are you interested in getting involved in Irish Research?

There are many diabetes-related research studies going on in Ireland and they regularly seek people with diabetes or members of their family to take part.

From 2017 we will be featuring a list of studies that have gained ethical approval and are taking place now in Ireland  and have been submitted to Diabetes Ireland by the research team.

irish Research Studies - click duration

 

 

 

The PACE study (Promoting Adolescents Communication and Engagement) -It is important that we find ways of encouraging young people to be active in managing their diabetes so they are more prepared for adulthood and to prevent worsening of their health, and the associated costs to the healthcare services. With the help of young people aged 11 to 17 with T1DM, we will develop an educational video and a question prompt list to encourage young people to be more actively involved in healthcare interactions with their doctors and nurses. Once developed, this intervention will be evaluated in a small trial to see if it helps young people to ask more questions and to be more actively involved in their treatment while attending a diabetes clinic at two children’s hospitals in Dublin. This research is being carried out over the course of three years in the School of Nursing and Midwifery, Trinity College Dublin, and in collaboration with two children’s hospitals in Dublin; the National Children’s Hospital, Tallaght and Our Lady’s Children’s Hospital, Crumlin.

 

Clinical trial to reduce phantom limb pain using virtual reality, augmented reality & serious gaming – Phantom limb pain, painful sensations that feel as if they originate from a missing limb, occurs after limb amputation for 50-80% of amputees and is associated with a number of negative outcomes, such as a decline in daily activities, sleep interference and a reduction in general quality of life.
Although more than 60 different treatments to reduce phantom limb pain have been proposed, controlled clinical trials on these treatments are scarce and tend to be of poor quality, meaning that we cannot tell for sure how effective these treatments are for reducing this type of pain.
This trial uses two treatments which are believed to be effective in reducing phantom limb pain and will examine if there is something about one treatment that is more effective than the other. Both of these treatments take advantage of modern advancements in computer technology by attempting to train the amputated limb using virtual reality.

 

Key stakeholders’ views, experiences and expectations of public and patient involvement and engagement in healthcare professional’s education: a qualitative exploration – Many studies have demonstrated that not only is it feasible to have patient and public involvement in education but that such involvement has the capacity for motivating students by fostering empathy, demonstrating the relevance of learning and encouraging the development of key professional skills such as communication. Despite the well-documented benefits of PPI/E, patient involvement in education is currently at a low level. However, attempts are being made by academic institutions to expand patient involvement so that they act as central participants in the delivery of education and in the design of curricula. The data generated by this study will help form recommendations for the development of a strategic framework of PPI/E activities for academic institutes that assures public and patient benefits, addresses their expectations and concerns, while achieving a high level of public and patient involvement in education.

 

COS-DAP: Developing a core outcome set for diabetes after pregnancy prevention – Diabetes After Pregnancy (DAP) often occurs in the years that follow a pregnancy complicated by Gestational Diabetes Mellitus (GDM). Many research groups are working to develop and test DAP prevention strategies. These large and long studies require lots of funding to study the relationship between prevention strategies and DAP occurring. Smaller, shorter studies tend to use outcomes other than DAP occurring to figure out if they are effective and different studies often measure different outcomes, making it difficult to compare results. Core Outcome Set (COS) projects work to create a list of essential outcomes that need to be measured in studies to ensure the results can be used effectively.

 

 

Patient Narrative Project – Your Voice Matters-The Patient Narrative Project (Your Voice Matters) was initiated in 2016 through the Clinical Strategy and Programmes Division, HSE to position the voice of patients and service users centrally in the design and implementation of Integrated Care through the four Integrated Care Programmes (ICPs). Your Voice Matters is one way of collecting and using the voices and experiences of patients, service users and their carers and families to design and improve health services across all healthcare settings. Your Voice Matters is particularly interested in hearing about the experiences of people living with chronic conditions.

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How can pharmacists develop patient-pharmacist communication skills? – An opportunity to ask if you would like to take part in some research for the School of Pharmacy, RCSI, about how pharmacists can learn to communicate with patients. Interested in learning what YOU think might work and about YOUR experiences communicating with pharmacists, in various settings.

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Strive Study – The aim of this study is to investigate the effectiveness and cost-effectiveness of Saxenda in the obesity clinic settings with a protocol for targeted use of the medication in patients who are “early” and “good” responders to the treatment. This approach is expected to minimise the side-effects and unnecessary exposure of those who will not achieve significant weight loss with the drug, optimise the costs of the medications and target the patients who will benefit more from its use.

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COMPAR-EU COMPAR-EU is a multi-method, multi-component, inter-disciplinary project funded within the EU programme for Research, Horizon 2020. COMPAR-EU will contribute to bridging the gap between current knowledge and practice on self-management interventions or SMIs

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Study on Type 2 diabetes using Diabetes Smart  Diabetes Smart is an interactive online educational programme that will help you to understand what you can do to control your own diabetes

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the Type 1 Family Experience This research is investigating how young people (11-17 years) learn to manage type 1 diabetes and how young people and their parents communicate about self-management responsibilities for type 1 diabetes.


ProACT: A new technology designed to help people  living with more than one  chronic health condition. This research tests if ProACT  can  track the different medications, symptoms, tasks, and provide the knowledge they need to help them to manage their health. 


Assessment of the views of people with chronic conditions about their Healthcare. This study is investigating the patient view on  healthcare products (pumps, medication) to try to better understand the ‘patient voice’ and improve the decision-making that goes into developing these products.


Structured Education Programmes for Type 2 Diabetes. This study is investigating the factors and outcomes associated with attendance at structured education programmes in adults with Type 2 diabetes


SUSTAIN 8: Efficacy and safety of semaglutide versus canagliflozin as add-on to metformin in subjects with type 2 diabetes. This trial is looking at the addition of either a once-weekly injectable medication or a tablet for people with type 2 diabetes taking metformin only, to see if blood glucose control can be further improved. Weight loss, quality of life and other safety measurements will also be investigated.


Exercise combined with protein for improving glucose control in type 2 diabetes.  This study is investigating whether combining exercise and protein supplementation improve your ability to regular blood sugar after a meal.


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