Name of Study

Patient and Public Involvement (PPI) Panel for the Converge Research Centre

Purpose of Study (300 words)

PPI is research carried out ‘with’ or ‘by’ members of the public with lived experience rather than ‘to’, ‘about’ or ‘for’ them. It means working in collaboration or partnership with patients, carers, service users, families, people with lived experience, or the public, in planning, designing, managing, conducting, dissemination and translation of research.

Converge: Centre for Chronic Disease and Population Health Research are creating a panel of PPI partners who can share their lived experience to inform one, or multiple, of our research studies. As a research centre we are involved in multiple studies running at the same time. We also collaborate with healthcare professionals, policymakers, and other groups to make sure our findings lead to real changes that can improve lives.

We are now looking to create a panel of PPI partners who can work with us to:
1) Ensure the research questions, and the research being conducted, is important to those who will be affected by the research and subsequent findings.
2) Improve the quality of the research being conducted.
3) Ensure research findings are being communicated effectively to the general public.

More information can be found at: https://convergecentre.eu/

Type of Study (observational/exploratory etc)

This is not a study. We will be working with PPI members, and learning from their expertise, to inform funding applications, review data, review recruitment materials and inform dissemination of our results.

Are you recruiting participants for this trial?

• Yes

State geographical location of study (city/county/country) (single or multiple sites)

Across the Republic of Ireland

Who can take part?

Those over the age of 18, living within the Republic of Ireland, and who have been diagnosed with or care for a person with a chronic condition. This includes people with prediabetes, Type 1 diabetes, Type 2 diabetes, COPD, Asthma, conditions affecting the heart or blood vessels.

What will the participants be asked to do? (max 300 words)

PPI members will work with us to:
1) Identify priority areas of research.
2) Review and comment on research materials.
3) Identify ways that patients/carers can be recruited to participate in our research studies.
4) Review research results and help with dissemination of the results to the public. One goal is to try disseminate groups to “hard to reach” population, and we hope PPI contributors will help support this.
5) Inform development of our public and patient engagement strategy.
6) Support researchers to assess the impact of PPI in their work.

Recruitment Start Date

03/03/2025

Recruitment Finish Date

07/04/2025

Study Duration

The research centre has funding for 4 years, but there is no expectation for contributors to work with us for the full duration.

This study is funded by:

Research Ireland

For further information contact:

Jennifer Pallin

Phone

083 852 5026

Email

jenniferpallin@rcsi.ie

NAME – completed this form

Jennifer Pallin

Ethical Approval & Relevant Documents & Logo’s

• PPI-Flyer_Feb-2025.pdf